Allright, so I now have a title.

I started seeing a new doctor this last week, after getting really sick at JH Ranch. I'm still on crutches and such (same old story, I guess), but we've had a mini breakthrough. They figured out a title for me. I am "female adult patient with severe neuromusuclar disorder coupled with an unknown progressive brain disease." Besides being vauge and unhelpful, it's scary as hell. My title really doesn't give me anything. It really helps my doctors more, I think, because they finally have something that they can write down. But it really decides nothing. It just kind of gives them a direction to move in.

And that direction is moving FAST. The doctors are moving my care up to the University of Washington, and I'm going to have more tests done than I care to count. I have to have a spinal tap next week (OWWW!) and some electric therapy...it's bad times. So that's the latest.

I'm trying hard not to be scared, but it's hard when my doctors are. They are really worried and are suddenly treating my case with a new sense of urgency.

Sorry this is not longer or more thorough. I'm VERY tired. Because it's like 1:45 am. Hope y'all are doing well.

So much for updating more...sorry, guys.

So I just got back from Whistler. Kelsey, Chelsea and I went up to stay in my family's condo that we get every summer. Mom and Warren were there, because we couldn't stay that without someone who was 25 years old. So yeah...we had fun, just hanging out. Watching movies...sleeping in...it was good times. Now we're back. Having fun 4th of July times.

So yeah...Just wanted to say hi to my TGC girls. I was looking through Tour pictures today. I miss you guys so much! Just thought I'd say it here. Love you!!

This is going to have to be a short update because it's getting late and I am exhausted.

Today was a good day. It was Senior Skip Day, now that Oral Boards are over. (I got an exemplary! Yay!) We went out to breakfast this morning (we, being Bethany, Jeremy, Meghan, Dan, and Becca) at the best restaurant in the world. It's called the Sunriser, on 6th Avenue in Tacoma. Holy Moly - it's the best food I've ever had. Period.

So we went there first, and then we went to Owen Beach in Point Defiance park. It was fun, but now I'm fried. Well, only on my right side, because we were there before the sunny was fully up. Meh - oh well. It was worth it. But now I'm worn out, 'cause last night I didn't get in until like one because we went to see Finding Nemo. (Great movie. Another recommendation).

Um...other updates...Prom was great. I'll put pictures up when I have time to figure out how. Slowly, I'm getting better. Very slowly. Hopefully, I'll be walking by graduation.

Bethany is moving next week. It's killing me, becuase both of my best friends are moving! I know, blah blah we are going to college blah blah. But, Kelsey is moving to Albeaquere (which I can't spell) and Beth has to go to summer semster at BYU...I'm just frustrated, becuase they know me the best and they are leaving me. It's really sad, but I'm trying not to be upset. Bah - it's not working well.

That's going to have to be it for now. OH! Katy, I loved seeing you. Sorry I didn't get to e-mail you before the tea (which I obviously didn't go to). Just wanted to tell you that I will e-mail you (probably tomorrow.) Love you lots!

Love all y'all! Drop me a line - I'm going to be REALLY bored after Beth leaves.

We got back from California today. It was SUCH a good trip. We took first at the festival, got the "Outstanding Choir" award, the "Adjudicator Award", and our scores were really good (two 96's and a 97). It was a Heritage Festival, and after last year's embarassing Heritage experience, it was just good times.

Disneyland/California Adventure was a lot of fun. I got a wheelchair 'cause I wasn't really going to walk around all day with my crutches, so that was good and bad. It was frustrating because I became so dependant again. After I got out of the wheelchair last time, I was SOO adamate about not being in one again.And I know that I was only in one for like a day, but still...it was just mentally frustrating (for lack of better phrasing). But, on the plus side, I got to go to the front of all the lines and I got to take like 6 people with me, for no real good reason. It was entertaining...I was dubbed the ride whoer of the choir, but what can ya do? It was good times.

Let's see...what else is there...I'm exhausted right now, so I think I'm just gonna head to bed.

BTW - I've done TWO updates recently...let's see if I can keep this up.

Wow - I haven't updated my weblog in like a year...I still read everyone's updates...I just haven't had much to write. Well, that's not true. Actually, let me update y'all on my life as of now. This may take awhile

The good things:

- I am loving being a senior. We got our graduation things today, so it's just all starting to become real. Though there are times when the reality of moving out and growing up seem to hit hard, it's mostly just fun.

- Meistersingers leaves for Anaheim tomorrow. That'll  be good times. We get to spend a day at Disneyland/California Adventure! I haven't been down there since I was like eight. That'll be exciting...and plus, I'll get to go on all of the rides first because of the nerve stuff (which, come to think of it, y'all probably don't know about, so I'll explain that later). So, it'll be good times. I'm ready for a "vacation" with friends (it won't be a complete vaction, but really, let's be honest. It'll be with some of my closet friends in Disneyland. It doesn't get much better.)

- I did All-State this year...that was good times. Not much to really say on that, execpt that it's choir related and talking about Meistersingers made me think of it.

- I'm going to prom with Jerome (Jeremy Bryant) in like a month...so I'm getting all excited about that 'cause I get to buy a pretty dress. So that's lots of fun.

There's other good things...but I have some major "Less than Good" things to get to, so I'll start explaing those:

- I have no feeling in my legs. Sounds very dramatic, and it kind of is...but, they've been numb for three months, so the drama has kinda worn off to me. All of this started in January...and it's been this up and down rollarcoaster of sorts. I was in a wheelchair for awhile, because I lost all strength and feeling in my legs. Then I got the feeling back, and went back to crutches. But then, I kept falling a lot and hurting myself, so I now have a walker (whose name is Boris and has a cute little bell). So yeah, they aren't quite sure what's wrong with me yet, which is frustrating. We've done all the testing for really bad things (like tumors and such), so there's nothing like that. Then, we did all the testing for things that it could be like nerve disorders and things - and it's none of those. So now, we are into the obscure diseases. As I see it, I'm challenging my doctors to remember every weird and random disease their learned in medical school, and then remember how to test for it. I don't really know how I feel about this. I mean, I'm not worried because I trust that it will be figured out soon. I mean, I have no reason not to think that, and my doctors are incredibly qualified. Now, I'm just really annoyed. I can't do lots of things that I should be able to do. I can't get a job, so I can't earn money for college. I can't do lots of things with my friends (Like weekly ultimate frisbee) and that makes me sad. There's other things involved and other things that I'm upset about with it, but that's basically it. I'm annoyed and I can't walk.

- My dad got married last weekend. I would have posted something about his engagement earlier since I use this page to rant about my family life but here's the catch - he didn't tell me about the wedding. He didn't even tell me he was engaged. I don't know exactly how I'm feeling about this yet. I mean, he got secretly married. How do you do that?? The worst part is that some of his friends knew, and his kids didn't. It's not like he and Lorie went out and just eloped, though by definition they may have. I mean, people knew before me - and that's just not right, ya know? I mean, I'm his daughter - and now I have a stepmother. You think that should be something I should know BEFORE it happens. I dunno...so that's where I am with that. This kind of shocked phase. It still just isn't real.

Wow...there's so much more I want to write, but I'm exhausted. Again, sorry I haven't updated in awhile. I'll try to be more frequent...but, as they say, Good intentions pave the road to Hell. Meh - what can you do?